
Supporting families with terminally ill children
The Rainbow Trust is a children's charity that offers support to families who have children with illnesses that are terminal or life threatening.
This amazing children's charities offers both practical and emotional support through its services.
The Rainbow Trust's vision is to see the day when all the families who have a terminally ill child will be able to benefit from the services of a Rainbow Trust carer.
The charity prides themselves on an approach where they listen to the needs of the family on a case by case basis and work in an inclusive manner and always make sure the bespoke care they provide links strongly back to their 'Philosophy of Care'
About the Philosophy of Care
Providing exemplary care is at the core of the Trust's values. The staff and carers have a deep respect for the individual needs that each family they are referred to required in order to provide the best support.
Their goal is to build strong partnerships with the families and administer support in their own homes and local community. This is all achieved through their dedicated Family Support Worker.
Even if a family becomes bereaved this is not the end of the relationship with this inspirational organisation. The Rainbow Trust will continue to provide support as long as the family feels they require it.
The whole point of their approach is to provide methods of empowering the families to take back control of their lives through the times of sorrow and lack of clarity about the future that having a terminally ill child brings.
At all times the needs of the family are treated with the utmost respect.
The kinds of support they provide fall into the following general categories:
Family support
Helping families cope with life's commitments and providing space and time to enjoy moments together.
Support for siblings
When a brother or sister is ill it can place enormous pressure on siblings. The Rainbow Trust's work helps alleviate this pressure on the other children as they cope with the uncertainty of such harrowing times.
Support while in hospitals
The Trust helps to reduce the pressures of long stays in hospitals which can be extremely stressful for the ill children and their parents and siblings.
Support when bereaved
As we mentioned above, if the family suffers the tragedy of the loss of a child the Rainbow Trust charity still offers support to the family as long as they feel they require it. This can continue for months or even years and each case is very different.
If you are moved by the work of the Rainbow Trust then we would strongly urge you to support their work with a donation.